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Life In Our Bubble: Keep Off The Grass

29.06.18

Summer’s here. Everything’s out. Hot sun, bright flowers, beach bums in shorts’n’ flip flops, the barbecue crowd. Our daughter has been stuck indoors for days now, lying on the sofa with the occasional foray to the bathroom and then back to her room at night. She’s feeling rotten while the world goes on around her,


Life in our Bubble: Family Show

05.06.18

It’s bank holiday weekend and the last day of the annual cultural festival that our city hosts. Our daughter has been to quite a few shows, tickets the gifts of friends who know that she loves spectacle and live performance. She’s seen dance, physical theatre, music. We’ve seen lots of street acts as well. It’s


Life in our Bubble

Life in our Bubble: Friends

30.04.18

Our daughter is an only child. We’ve always wanted her to have friends, or at least a friend. Someone like her. A pal to hang out with, go on outings, enjoy similar things. A chum who isn’t paid to be with her or support her. At the moment she doesn’t have this. When she was


Life in our Bubble

Life in our Bubble: Same But Different

28.03.18

The day I was introduced to a friend’s step daughter over 30 years ago is etched deeply in my mind. She was profoundly disabled and had a rare genetic condition. I had never met anybody like her before. I didn’t know how to be, how to communicate in a meaningful way with her, what to


Life in our Bubble

Life in our Bubble: Weekend

21.02.18

It’s Saturday morning, early. My partner is sleeping after a period of wakefulness in the middle of the night. Our daughter is curled up in bed listening to audio stories. She’s been drifting in and out of sleep for a while but isn’t ready to get up yet.  I hear occasional chuckles emanate from her