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Life in our Bubble

Life in our Bubble: But I love her…


People come and go. It’s how the world works. We understand its fluidity, constant motion, however subtle and slow. In our world, our daughter’s world especially, constancy is crucial though. And sometimes we just want to stay still for a while. Despite our best efforts, unfortunately it’s not always possible. The other day one of

Life in Bubble

Life in our Bubble: Breathing Space


Much as we love our daughter and enjoy our family life at home together, we need a break from each other from time to time. I don’t need to say how all encompassing and unrelenting it is being a carer. Finding time and space for ourselves can be a challenge. It’s also important to us

Working nine till five life in our bubble

Life in our Bubble: Working Nine To Five


We have always been working parents. I am a commuter, with a day at home a week to catch up on paperwork. My partner works predominantly at home now and is self employed.  Our ways of working have altered over the years of course, in line with our daughter’s changing needs and circumstances as she’s

Best Laid Plans

Life in our bubble: The Best Laid Plans


Our daughter’s been on holiday. So have we. Separately. Just for a few days, but still. And now we are home again and all in one piece. When she was eight she went away without us for the very first time. We didn’t have respite then. We had accepted an invitation for her to join

Hot day Life in our bubble

Life in our bubble: Hot Day


Summer’s here and the windows are open. A faint breeze floats into the room from time to time but mostly the air lies heavy and hot. Our daughter is not feeling well. She’s had a tough couple of weeks and today is most definitely a bed-on-the-sofa day with dvds turned down low. She needs focus