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Down’s Syndrome and Decision Making at 18


By Katherine Miller Down’s Syndrome Awareness Week (18th – 24th March) and World Down Syndrome Day (21st March) are focusing on challenging society’s misconceptions about Down’s Syndrome and highlighting that a person with Down’s Syndrome should have the same opportunities as everyone else in every area of life. The Down’s Syndrome Association highlights that ‘Adults

Downs Syndrome Benefits and Work


By Jayne Knights To coincide with Down’s Syndrome Awareness Week 18th – 24th March, this blog concentrates its benefits beady eye on how people with Down’s Syndrome can work without sabotaging or losing any benefits they receive. The benefit rules, of course, apply to anyone, people with Down’s Syndrome are just as likely to be

Sense – ‘When I’m Gone’ campaign


In our latest guest blog Sarah White, Head of Public Policy and Campaigns at Sense talks about the charities ‘When I’m Gone’ campaign. What will happen when I’m gone?  This is a question that we are all likely to think about at some stage in our lives, but what if you are the primary carer

Life in our bubble: She'll always be

Life in our Bubble: She’ll Always Be


Our daughter was first referred to paediatric services when she was nine months old. This followed our concerns that she was not reaching her milestones and did not seem to be interested in her surroundings. Despite the many assurances we were given by the health visitor that it was only a matter of time, we