03.04.19
Thinking about a time when you may not be here to support your children can be frightening for parents. If you have a child with autism, their future can be especially difficult to think about as they may have varying needs throughout their lifetime. It is natural to worry about…
21.03.19
On World Down Syndrome Day (21st March) one of our clients Holly who has Down’s Syndrome shares her story… My name is Holly and I am 27 years old and have Down’s Syndrome. When I left school at 19, I chose to go away to college as I wanted to get…
20.03.19
By Katherine Miller Down’s Syndrome Awareness Week (18th – 24th March) and World Down Syndrome Day (21st March) are focusing on challenging society’s misconceptions about Down’s Syndrome and highlighting that a person with Down’s Syndrome should have the same opportunities as everyone else in every area of life. The Down’s…
18.03.19
By Jayne Knights To coincide with Down’s Syndrome Awareness Week 18th – 24th March, this blog concentrates its benefits beady eye on how people with Down’s Syndrome can work without sabotaging or losing any benefits they receive. The benefit rules, of course, apply to anyone, people with Down’s Syndrome are…
19.02.19
By Katherine Miller A trust is an arrangement where assets are transferred to a small group of people for them to hold for the benefit of others. A personal injury trust is any trust that holds money or assets that came from an award of damages or compensation for any…
12.02.19
Recently a friend broached the subject of our daughter’s life expectancy. I knew where the conversation was heading long before she asked the question. She just came out with it in the end. I gave a brief answer but didn’t dwell on it. It’s upsetting to talk about and I…
31.12.18
Our daughter’s watching The Muppet Christmas Carol. She’s come back from a Snowman show with one of her PAs and is tired but unrelenting in her desire to keep the Christmas theme going. My partner and I had taken advantage of this outing to do something we couldn’t otherwise do…
27.11.18
Our daughter’s away at respite. The months are winding down and soon she will be too old to go to the centre she’s been to every month for the last couple of years. It’s for young adults only. The time is nearing for more assessments, reviews, wrangling; more looking for…
24.10.18
Some days just don’t turn out as you expect them to. They may require a range of adjustments. You just never know how they will pan out. It’s true to say they can have their ups and downs as well. Take the other day. It was meant to centre around…
19.09.18
Our daughter likes nothing better than a good bounce on her gym ball whilst watching videos featuring her favourite girl bands, animal sneezes or clips from tv programmes past and present. The choice is endless thanks to the wonders of YouTube. Her current preference is anything by Dua Lipa. The…