06.10.20

In this blog, we are going to look at Disability Living Allowance (DLA) for children (aged under 16) who have autism or autistic spectrum disorder.

DLA is the only benefit specifically available to children with autism. However, once DLA is in payment, it may mean that their parent/carer can claim Carer’s Allowance in respect of the care provided to that child. It may also mean that other means-tested benefits in payment to the parents (such as Child Tax Credit or Housing Benefit or Universal Credit) may be increased.

DLA can provide financial help with the extra care and supervision that a child with autism needs, over and above other children of the same age. This means that proving your child needs more care and support than another child without autism is crucial. It is also vital to detail the time spent providing care, support and supervision. 

Disability Living Allowance

DLA is a very important and valuable benefit for those aged under 16 who have autism. It is not means-tested (so any income or savings that the child or family members have are irrelevant). Receipt of DLA can also act as a gateway to other benefits and to help access other vital resources within the welfare system. It is paid on top of any other benefits that are in payment.

DLA can help with the additional care / supervision / support needs a child with autism may have, as well as help with their mobility. It has two components: the care and mobility component. The 2021/22 rates of payment are:

Care component:

High rate £89.60

Middle rate £60.00

Low rate £23.70

Mobility Component

High rate £62.55

Low rate £23.70

DLA and Autism

What we want to look at in this blog is how DLA claims can be made effectively for children/young people with autism.

Many parents we speak to have been put off claiming DLA as they have heard it is a complicated and stressful process, and that autism is “not properly understood” and “how can I explain what my child needs – will they even understand?”.

Well, we agree absolutely that DLA claim forms are long and require lots of detail, and that the DLA assessors are not always very knowledgeable about autism. However, there is no reason why families caring for a child with autism should not make successful DLA claims. So, here is a list of things to think about when making a DLA claim for a child/young person with autism.

Making that DLA claim – top tips!

  • The DLA claim form is the same form for all claimants, and many people say it focuses too heavily on physical disability. Do not be put off if the autism related needs you want to express do not seem to be mentioned. Wherever the form asks ‘what help your child needs’, remember that this does not only refer to physical help, but also non-physical help such as prompting, encouraging, reminding and supervising. It is really important that you mention all these types of support which your child needs. Be really descriptive in what you write. Explain exactly what your child needs. Put examples of things that have happened when prompting, encouragement or supervision was not available, to show how vital and important that support is. Real life scenarios help the DLA assessor to understand your child and their needs. This is really important as the DLA assessor will never meet them!

Examples:

Your child may be physically able to have a shower but will not do it without lots of prompting and reminding, and with you being around to supervise their safety. How long does (this often) repeated prompting / supervision actually take?

Your child may need constant prompting and assistance to eat and drink, or to stop eating, or guidance on what is or isn’t edible. This help will be needed many times a day.

Your child may need aids to support communication. How do they communicate? Do they require 1-1 support at nursery or school?

They may need supervision to keep them safe from hurting themselves or others. How do you manage this? Who provides this support? This could be 24 hour supervision in some cases. Remember, supervision may be just keeping a watchful eye and being aware.

  • DLA is based on what support your child requires in respect of personal care and mobility needs. So, it is important that you spell out exactly what those needs are and what support is needed (you can even include needs that are not met).
  • Some people say that the DLA form does not have enough space for all the information to be fitted in. Not a problem! Just add some extra sheets of paper – but make sure you add the child’s name, date of birth and NI number to each additional page and number them – just in case they get separated from the claim form!
  • Don’t just tick boxes. If you have replied ‘yes’ or ‘sometimes’ to a question, then put an explanation. The DLA assessor may never have even met anyone with autism, so explaining things in specific detail will really help them understand how autism affects your child and ensure the claim is determined correctly.
  • It will help your claim if you have a professional diagnosis of autism or autistic spectrum disorder, but your claim can still be sent in if you have not yet had one – just make sure that your supporting evidence is as detailed as possible.
  • Keep a diary – this can help show the DLA assessor exactly how much help and support is given to your child, and how long these activities take. Sometimes parents are so used to looking after their child, that they forget they are spending so much longer than another parent whose child does not have autism. The diary also helps the claim to be accurate.
  • Attach useful supporting documents which may help the DLA assessor understand your child and their needs. Evidence of diagnosis is important, but so is evidence from anyone involved in the care and support of your child – teachers, grandparents, carers, friends. Also include any evidence from professionals such as Occupational Therapists, Health Visitors, Speech and Language therapists.
  • It is a good plan to complete a draft form first, to get the wording exactly right. Then, once you are okay with content, complete the final version.

What help can Renaissance Legal provide?

Using these top tips, you are hopefully feel more confident about completing that DLA claim form.

Jayne Knights and Amy Swinnerton are highly experienced in helping with DLA claims. If you would like to discuss any help or support you need with making a DLA claim, please contact Jayne and Amy by clicking here.

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14 Responses to “Disability Living Allowance for children with Autism”

  1. Brian Phillips says:

    My daughter has applied twice for this
    But been turned down her child is nearly one year old she has all the paper work from doctors and specalists saying he is autistic so i cant understand why she hasnt been awarded anything

  2. Michela says:

    Hi
    I got a telephone call today from my sons consultant informing me they wanted to discuss my sons genetic blood test results that he had taken nearly A year ago, the consultant was very helpful but to be honest my mind went blank once he informed me of the results
    My son has been diagnosed with a rear unique genetic chromosome 7 duplicate syndrome I was wondering do I need to inform the DLA OF THOS

    • Benefits Team says:

      Hi Michela, thank you for your comment. We can offer you advice on your personal circumstances, but offer a chargeable service, and so you would need to register as a Renaissance Legal client. Our benefits advisers are highly experienced, please do email us on benefits@renaissancelegal.co.uk if you would like to take this further.

  3. Diane Johns says:

    My grandson who is 12, has ibs (made worse by anxiety) and also has severe mental health issues has to wait well over a year only to be rejected for dla due to long delays because of covid.
    We immediately claimed again and have been rejected yet again, and now ha vs to go to mandatory reconsideration again!!
    It seems that his school seem to be blocking this with their responses, as he is so good at masking his problems at school then ‘explodes ‘ when home.
    Phyiscal and verbal abuse to younger siblings and parents so e has to be watched all the time.
    Constantly saying that he is going to kill himself or run away so all doors and windows are kept locked and All sharp objects removed.
    Constant cajoling to wash, shower, clean teeth and all sorts of personal hygiene.
    Family life is one huge battle ground and all of his parents time is take up with him as sometimes it takes both of them to deal with him.
    He has a family support worker.
    We would appreciate help in getting the dla he deserves.

    • Benefits Team says:

      Dear Diane, thank you for your comment. We are so sorry that this is such a difficult time for your grandson and family. We can offer you advice on your personal circumstances, but offer a chargeable service, and so you would need to register as a Renaissance Legal client. Our benefits advisers are highly experienced, please do email us on benefits@renaissancelegal.co.uk if you would like to take this further, we’d be delighted to have a conversation with you about your circumstances.

  4. Imane says:

    Hi do you offer free help and advice for helping fill out DLA

    • Benefits team says:

      Hi there. We can assist with this, however we offer a chargeable service, and so you would need to register as a Renaissance Legal client. Our benefits advisers are highly experienced, please do email us on benefits@renaissancelegal.co.uk if you would like to take this further, we’d be delighted to have a conversation with you about your circumstances.

  5. Mary Banham says:

    If I have proof that my child is on the autism assessment waiting list, will I be eligibly for an increase in universal credit before a DLA benefit is granted. There is approximately a two year wait in my area for assessment. Also a three month wait for assistance from Dial to help me with DLA form

    • Welfare Benefits Team says:

      Many thanks for your comment, Mary. Our expert team has made contact with you separately with help on this question.

  6. Melanie Biddle says:

    I would like support with completing my DLA application for my son who has ASD.

    • Welfare Benefits Team says:

      Many thanks for your comment, Melanie. Our expert team has made contact with you separately with help on this question.

  7. Mike jones says:

    My daughter has recently been diagnosed with autism, me and her mum have split up and I only have her every other weekend ? Am I entitled to any benifits to help care for her when she is with me as I have to move to a larger home so she can have her own bedroom and space as it stresses her sharing with her step sister

    • Benefits Team says:

      Hello Mike. We can certainly help with your family’s circumstances and have experience in benefits claims when two parents have separated. We do offer a chargeable service, and you would need to register as a Renaissance client, which is a very straightforward process.

      Please contact us at benefits@renaissanelegal.co.uk if you would like more information about our fees and services.



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